When you are caring for someone with CTCL, your quality of life can change. One important goal is to find balance between your role as a caregiver and your own interests and needs.

A new way of thinking
You know that CTCL has an impact on the person you care for. You may not realize, however, that CTCL may have changed the way you think about your life too.

Recently, have you had any of the following thoughts?

“I want to go to the concert, but I should stay with Joe when he is tired.”

“I want to go to the concert, but I should stay with Joe when he is tired.”

• Why not think of a solution that works for both of you?
  • “Joe needs to rest. I can go to the concert and enjoy time with Joe when he wakes up.”

“When my family or friends ask how I am, I should say, ‘I’m fine.’”

“When my family or friends ask how I am, I should say, ‘I’m fine.’”

• It's okay to be honest. You might want to say something like this:
  • “When I’m feeling worried and stressed, it would help to talk with someone about my feelings.”

“I can do this on my own.”

“I can do this on my own.”

• You don't have to do everything, so give yourself a break.
  • “I need help. I’ll ask for the support I need.”

“Others have it so much worse. I shouldn’t complain.”

“Others have it so much worse. I shouldn’t complain.”

• Be kind to yourself and acknowledge your true feelings.
  • “I’m allowed to feel frustrated and overwhelmed. This is hard, and I’m doing the best that I can.”

The Cancer Survival Toolbox is a free resource for both patients and caregivers. It can help you develop skills in the areas of talking with others about health care issues, finding information, decision making, problem solving, and caregiving. Download this free resource from the National Coalition for Cancer Survivorship. Or order a copy of the Toolbox by calling 877-NCCS-YES (877-622-7937).