Cutaneous T-Cell Lymphoma
 
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Learn how to live with
cutaneoust-cell lymphoma and continue doing what you enjoy.
Download a resource guide to learn ways to help you cope with the physical and emotional challenges of cutaneous t-cell lymphoma.
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To report side effects, call 800-FDA-1088.
Understanding CTCL: Emotional aspects of CTCL

Because CTCL affects many areas of your life, living with symptoms can bring up many different feelings. You may find yourself feeling:

  • Angry at having this disease and at the limits it is placing on your life
  • Worried and frightened about the disease and what the future may hold
  • Embarrassed by the way you look
  • Lonely because you may be spending less time with other people

Coping with your feelings

There are steps you can take to understand and manage your feelings.

Steps you can take

This can help you feel more in control. A good source of information is the Cutaneous Lymphoma Foundation. Other resources are available.

Tell your health care team if you do not understand what they are saying or if you need more information. Learn tips for talking with your treatment team.

Support groups allow people with CTCL to share their feelings, offer coping tips, and learn about new cancer treatments. For help finding a group, visit the Cutaneous Lymphoma Foundation.

Some people prefer to talk with someone one-on-one. Ask your doctor or nurse to refer you to a counselor. Or talk with someone from your spiritual community, a close friend, or a family member.

Writing down your private thoughts and feelings can help you sort through them and understand them better.

Living with CTCL can be stressful. You may find it helpful to learn and practice stress management skills, such as deep breathing, meditation, or slow, gentle stretching exercises.

Think about the healthy ways you have handled problems and managed stress in the past. Try using those ways again. For example, you may want to:

  • Talk with a friend
  • Take a walk
  • Listen to music
  • Just sit quietly by yourself for a while

Some doctors think that hope may actually help the body deal with cancer. It can help to remember that:

  • More people are surviving cancer today than in the past.
  • Many people with CTCL lead active lives even during treatment.
Cutaneous Lymphoma Foundation Brochure Series
Cutaneous Lymphoma Foundation Brochure Series: Merck has partnered with the Cutaneous Lymphoma Foundation to offer patients 3 informational brochures on CTCL and its treatment — Living With CTCL, Taking an Active Role in Managing Your CTCL Care, and Your CTCL Treatment Guide.